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Jonas's avatar

Yup…very heavy and sad for a lot of people. But you remain correct in knowing you are supported by those of us closest to you in any decision you make for yourself. Love you pops.

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Patrick Dufour's avatar

Hello Sean. Thinking about the end of life when facing a prognosis affecting the ability to carry out daily activities is in my view healthy. The first thought is the load on family members entitled to dream about their own life. The second thought is of course the loss of the self, thus it's hard, at least for me, to grasp what does it mean.

I have been there few months ago. It’s sad, it’s dark to flirt with the fear of death or the annihilation of oneself!

I understand the knot. But, in my view, this one knot on the knot rope of life. A few months ago you have been hitting such a knot and it turns out, as far I understood, the last six months have been rich in activities, discoveries and encounters. In other term, we never know. And may be, just speculating here, we don’t care that much when we really know!

Hang on and enjoy what’s left of your life, like we all should do.

Be well for a long time. Patrick

“The happiness of your life depends upon the quality of your thoughts.”

Marcus Aurelius

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Susan's avatar

I remain amazed at your ability to write about the hard stuff of life, especially on a day like this. I think you're approaching the progression of this illness and your life with unbelievable compassion and thoughtfulness, including sharing the agony of a day like this with all of us. I also feel some sympathy for the person who called you selfish. I obviously don't know her or where she's coming from, but I think that many of us who aren't deeply examining ourselves and choices the way you have been can be prone to making thoughtless, flippant -- or selfish -- comments. I may be way off, but I'd like to think she's kicking herself right now for her own selfishness.

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Mary Marble's avatar

Hard day for sure in this blog. Good to get it all out!

Kick the can down the road and know that you are allowed to do so.

Your feelings and needs are so important and have my full attention and respect.

Now, get back your positive you and keep lighting the flame(s) for you and 7,000 Americans with Alzheimers. Love, Mary

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Gerri Cote's avatar

Heavy and sad for sure. You and Wendy are loved by so many. May your sharing lighten your load even if only a tad. Tender hugs.

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Saras Yerlig's avatar

Sending you some extra love today! Thank you for sharing and being vulnerable 💜

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Adam Howitt's avatar

Great read- and thanks for sharing. Hope the next day is a good reset

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