Thank you so much for sharing this Sean. I am in awe of both you and Wendy, truly. The strength, the humor, and the humanity with which you write has moved me deeply. I will carry your words for a long time. I am so so sorry that our healthcare system failed you both so spectacularly and am super relieved you found a doc with such tenacity! Please know that I am here for the journey and rooting for you both. Sending you so much love, Rehema.
Hey Sean. This, as you know too well, is awful. But you tell your own story brilliantly, and as was the case back in the day when Wendy, you and I survived Peter Salerno, your unique stubbornness, appropriate for the son of anarchists, and wonderfully dark sense of humor shine through. I have no doubt that you will push this crappy disease to its limits as it tries to do the same to you. Thinking of you, and sending good thoughts to you and Wendy. Give 'em hell, amigo.
This information is devastating to both of us. The healthcare situation in the states is completely out of hand with insurer bean counters being the gatekeepers of care.
We are living in Ecuador and have english speaking doctors trained in the US and we can call any specialist directly and get an appointment within 48 hours. Our primary makes house calls also. Also fully insured care.
We both remember you both and love you both dearly. I miss you.
I don’t know what I can do to alleviate the pain of this, I am shattered.
Knowing you from those few years at Hillside, I have NO DOUBT your humor will get you through this. I’ll be following and cheering you on from the sidelines. Thank God you found competent providers (for Wendy too!). ❤️
My dear Grandma had Alzheimer’s. It broke my heart. We are the same age. I have no insurance, and a myriad of health problems now. I have went back and gonna read one a day of your blog. Hang in there and thanks for your insights and observations
I just read this and found it so painful. You write beautifully, Sean. How come I never knew that about you? Guess I was stereotyping because you were director of IT at King’s…Sending lots of love to you and Wendy.
Hi Vera, Thanks so much for reading. Yeah, that was one of the banes of my job. Nobody wanted to see me for much more than an IT guy (not saying I really felt it from you particularly). One of the reasons I stopped that line of work.
Wow Sean. You are one brave and funny guy. Your courage is inspiring. I know that you have a vast and supportive network and am so happy we’ve reconnected. Sending love and deep deep hugs.
Sean, I am shocked and distressed at your recent health journey and your diagnosis. There is nothing I could say to offer relief to the anguish you , Wendy and your family must be feeling but know I will hold you in my heart and hope for a lessening of your symptoms with this new drug. My very best wishes to you my friend.
I am so glad Wendy received a correct diagnosis and treatment. ❤️
Thank you so much for sharing this Sean. I am in awe of both you and Wendy, truly. The strength, the humor, and the humanity with which you write has moved me deeply. I will carry your words for a long time. I am so so sorry that our healthcare system failed you both so spectacularly and am super relieved you found a doc with such tenacity! Please know that I am here for the journey and rooting for you both. Sending you so much love, Rehema.
Hey Sean. This, as you know too well, is awful. But you tell your own story brilliantly, and as was the case back in the day when Wendy, you and I survived Peter Salerno, your unique stubbornness, appropriate for the son of anarchists, and wonderfully dark sense of humor shine through. I have no doubt that you will push this crappy disease to its limits as it tries to do the same to you. Thinking of you, and sending good thoughts to you and Wendy. Give 'em hell, amigo.
This information is devastating to both of us. The healthcare situation in the states is completely out of hand with insurer bean counters being the gatekeepers of care.
We are living in Ecuador and have english speaking doctors trained in the US and we can call any specialist directly and get an appointment within 48 hours. Our primary makes house calls also. Also fully insured care.
We both remember you both and love you both dearly. I miss you.
I don’t know what I can do to alleviate the pain of this, I am shattered.
Knowing you from those few years at Hillside, I have NO DOUBT your humor will get you through this. I’ll be following and cheering you on from the sidelines. Thank God you found competent providers (for Wendy too!). ❤️
My dear Grandma had Alzheimer’s. It broke my heart. We are the same age. I have no insurance, and a myriad of health problems now. I have went back and gonna read one a day of your blog. Hang in there and thanks for your insights and observations
rocknrollpimp
I just read this and found it so painful. You write beautifully, Sean. How come I never knew that about you? Guess I was stereotyping because you were director of IT at King’s…Sending lots of love to you and Wendy.
Hi Vera, Thanks so much for reading. Yeah, that was one of the banes of my job. Nobody wanted to see me for much more than an IT guy (not saying I really felt it from you particularly). One of the reasons I stopped that line of work.
Wow Sean. You are one brave and funny guy. Your courage is inspiring. I know that you have a vast and supportive network and am so happy we’ve reconnected. Sending love and deep deep hugs.
Sean, I am shocked and distressed at your recent health journey and your diagnosis. There is nothing I could say to offer relief to the anguish you , Wendy and your family must be feeling but know I will hold you in my heart and hope for a lessening of your symptoms with this new drug. My very best wishes to you my friend.
I am so glad Wendy received a correct diagnosis and treatment. ❤️